When Life Changes in An Instant

You think about it, but try to get such thoughts out of your mind. Middle of the night calls or emergencies.

On Friday morning at 3:30 a.m., Nick had to use the restroom. but he couldn’t. He couldn’t lift his body up off of the bed. He had no strength, was dazed, yet needed to go. He asked me to help him. I tried to lift him and finally, got him to sort of sit up. But it took all of my might. He couldn’t stand for a moment, but then leaned on me to get up, took a few really wonky steps … he didn’t make it to the restroom, and I could barely get him back on the bed.

“I’m going to call 911, I said.”

“No,wait a bit,” which meant, no, don’t do that.

I looked at him and listened to him for about 30 seconds and said, “I’m calling.”

Winston was on the bed sleeping.

I unlocked the front door, threw some clothes on ad stayed with Nick. He just couldn’t move and was getting worse.

After the ambulance arrived, I grabbed his medicine. I forgot about his medical cards.

Winston was excited to see the EMTs.

The EMTs and I talked about which ER to take him. In Cincinnati, I would have known. Down here, no.

They mentioned one that was close. Not an in-patient hospital, but the said he would be transferred to a hospital from there, if necessary.

I had to make decisions of whether to call the kids or someone. I called my son who lives in town. I had to have someone to stop me from feeling that I had been sling spotted into an orbit of no return.

I watched Nick be wheeled out on the gurney, unable to control his muscles and with no strength. Was it the Parkinson’s, a stroke, what?

I didn’t even remember getting to the ER, but on the way, I did think, geese, what are all of these people doing on the road.

At the ER, I got in to see Nick right away. He was scared. HIs blood pressure very high He really couldn’t talk. At that point, my son came. I called one of my daughters in Ohio and my son in Ohio. I didn’t call our youngest daughter because because I wanted to know what we were detailing with and it was the middle of the night, and I feared she would go to pieces. Even in an emergency, you have to think, think, think of how this will play out with your family.

A woman came into the ER. I said, “Do you know if the doctor has seen him?”

“I am the doctor,” she said.

I felt like an ass assuming it would be a man. Middle of the night thinking.

She said that she noticed what she thought was cellulitis on his lover leg. She bowed me how large of an area it was, how red and how hot. I had not seen it and Nick had not mentioned anything.

The last couple of days he said that he didn’t feel well, and he laid down to rest more. He also didn’t eat much. I told him he probably had the bug I had earlier in the week.

Me and my “bugs’. That is what I call an everything I get that is just a malaise, nausea, sleepiness, whatever.

They drew lots of blood and hooked him up to an IV with fluids. The doctor said he might have beginning sepsis.

Now, I am pretty knowledgeable on medical things. I have always had an interest and read lots of medical material. But I really didn’t know much about cellulitis, except it was a inflammation of the skin. Sepsis, was never on my horizon.

They arranged to send NIck to a hospital. The one that was closest was full. The next was Downton.

Let me backtrack. When I told my son that dad was sick and I had called ER, I asked if he could call his neighbor and friend who is a doctor. I hated being unconnected down here. I wanted and needed a point person for Nick so that he wouldn’t get lost in the system.

While they were assessing Nick,my son was on the phone with his friend who was working at a downtown hospital. He told Benhe would arrange a bed and that if we wanted, he would oversee Nick’s care and bring in the specialists, if necessary. My relief was great.

Nick was transported to the hospital, which was towards Uptown and a 40 minute drive.

As I drove, I felt scared and as if my life was collapsing. Nick and my family are my life, as they are many of us.

My daughter called and said she would be on a 1 o’clock flight.

Soon after we got to the hospital, my son’s doctor friend was in Nick’s room, examining him.

Although weaker from Parkinson’s, Nick has always sustained a certain degree of strength, fortitude and determination. Even through cancer and radiation and heavy duty chemo, he was strong.

But now?

The doctor suspected it was the cellulitis that might be beginning stage of sepsis, but the blood test results took 48 hours. But he was going to treat him as if he had it, anyway, because the signs were there.

Nick was put on two very strong antibiotics. He moaned and couldn’t get comfortable and was restless and filled with anxiety.

He was hot. The only thing that soothed him was if I rubbed his head and arms with a cool rag. So that is what I did.

A neurologist came and examined Nick and said he didn’t see signs of a stroke. He thought, as did the other doctor, that the infection had been brewing for a while and had taken over Nick’s system and caused the Parkinson’s to really go to town. They also believed that after the infection was taken care of, there was a good chance that Nick would return pretty close to his Parkinso’s level as before. Hopefully.

That is when I called my youngest daughter. Although upset and scared, she handled the news because we had information.

Our daughter who arrived and came to the hospital, saw Nick and passed what she saw onto her brother in Ohio. He decided that he should come down.

It is hard not to pretend not to be a basket case. I was very worried about NIck. I was in turmoil because I wasn’t sure how much I was going to have to handle. Worst case scenarios went through my mind that hadn’t had good sleep. I saw the cup as half empty and cracking.

Sleep that night was pretty much nonexistent as the cot they had was brought in from the Tower of London Department of Torture.

But I didn’t want to leave Nick. And it is good I didn’t. He needed my reassurance and cool rag rubs. My word, every hour the were drawing bloodd and taking vitals and things beeped and were just a mess.

I was officially loopy from lack of sleep.

When I have sleep, I can deal, am not a wimp and can’t make decisions. But I was glad my kids were here to help figure things out and to reassure me. I felt weak and I hate that. It is so hard to see Nick in such shape. But my kids? They stepped up. There was nothing but love in that hospital room.

It really bothered me that they saw me so wimpy and scared. And, I was a mess. I was going to wash my hair the morning Nick got sick. I looked like hell.

The amazing thing is, the antibiotics worked fast. Nick’s numbers returned to normal, quickly, including his blood pressure. He still felt awful, but he began to understand what he had and that treatment was being done.

The next night, even Nick told me to go get sleep. Our son said he would stay all night. He also said he could sleep anywhere, so I thought that cot wouldn’t bother him.

My daughter and I went home. She was exhausted and stressed and wonderful. Her life is busy, yet, she dropped everything to be here to help. She got pizza and I took a much needed shower and went to bed.

Nick’s numbers had improved so much that he was going to be released on Sunday. I was still not sure how this would play out. What if Nick couldn’t walk or make it to the bathroom? Over a couple of nights, things had changed. Was I strong enough? Where would I get help? What if I had to lift him, which I can’t do?

Fortunately, on Saturday afternoon, the physical therapist came. Nick could get up. He walked with a walker, down the hall. He went to the restroom. WEak and he needed some assistance. But he did it.

My stomach and heart felt relief.The what ifs left my head when I was told that the doctor had ordered home health assistance. People would come and check on Nick and his progress and provide physical therapy.

It turned everything around. The kids from Ohio rearranged their flights to go home Sunday evening, after we got Nick released, home and settled.

Nick had started bossing me around, so I knew things might return to close next to normal, or at least, doable.

As soon as we got home, the three kids and and my daughter-in-law and tewo of our grandkids came to the house. One had bought barbecue. Nick ate a bit but was weak, tired and sick. He went to bed but said visitors were welcome.

You know, there was a time during this when I thought, God, what have we done? I knew it was stupid, but as I said, I was exhausted.

The word had gotten out that Nick was sick. I heard from some friends and wonderful neighbors. Actually, I forgot to mention that Winston was well taken care of by my neighbor and friend, next door, who has a dog that Winston likes. Nick and I were so worried about The Boy, too.

By 3:30, yesterday, my two Ohio children left for the airport. They were on the same airplane. They had to go back to their lives. I couldn’t get the words out to say goodby. My eyes did that mother thing, you know, throwing tears. As hard as this time had been, and with our future still uncertain, good came out of this. To see how good my family is, how strong they are, and how much they have our backs, was the good that come out of this. That, in itself, made me stronger.

We missed our youngest daughter, but she was on the phone with us and with her dad in spirit. She told me that Friday was the first night that she didn’t have her dad tell her he loved her.

I am emotionally a physically wiped,but boy, am I counting my blessings. This morning, I took NIck with me to drop Winston off to get groomed, and then I took him with me to the dump. I certainly know how to show Nick a good time.

I allow steamed and scrubbed the bathroom and kitchen this morning. Though pooped, I have nervous energy.

But I am once again on the screened porch, looking at things differently. It is weird. Right now the garden doesn’t matter. The two cracked tiles in the bathroom I found this morning suck, but are not to be dealt with right now.

All that matters is Nick’s health, love and knowing that Nick and I planted the seeds for some really fine people. Not bad, huh?

And how was your weekend?

Susan

I don’t drive at night, but I did then. My mind was